How old are you?
What percentage better are you?
What was your diagnosis and what treatments did you try before FMT?
I have Ulcerative Colitis, first diagnosed in 1999. I have been through all the usual drugs: steroids, Messalazine, Cyclosporine, Methatrexate, Inlifximab, Pred enemas, Pentasa, Pentasa enemas, Azathioprine…
When did you have your first and last FMT treatment?
First treatment was March 3rd and last treatment in the initial sequence was March 14th. I have had around 4 subsequent top up treatments too.
How many FMT treatments did you need to see initial results and the results you have today?
I felt much better after three days! I had a lot of left sided pain and the massaging of the implant to the base of my colon was painful but from the third day on I didn’t feel any pain at all.
Were there other perpetuating factors in your illness or illnesses, or was your only issue a bacterial imbalance?
Not sure I am qualified to answer that question. The mere fact of being on such heavy duty immunosuppressant’s means that I was prone to infections and constantly exhausted and in pain.
Does your condition still need maintenance eg diet, supplements, medication etc to keep it in remission?
I was unable to eat healthy, fibrous food when I had UC but now I can eat anything so my diet is much better and I have lost 30 lbs in weight. I also take regular supplements, such as pre/pro biotics to maintain my overall health.
How and when did you first hear of FMT?
I read an article in an English newspaper called The Telegraph.
What factors did you take into account when deciding to do FMT?
My only other option was ileostomy surgery so I decided to give it a go once I had met with the clinic director and he explained how the implants were created and how the treatment was administered. I would not have had treatment via naso-gastric tube or using a pill.
What did your doctor/s say?
What was your FMT experience like?
Overwhelmingly positive and life changing. I was treated with the utmost kindness and gentleness by everyone involved. My condition was monitored every day and I was giving dietary advice and assistance too.
Do you have any funny stories from your FMT journey?
My friends thought it was hilarious…until they saw they changes in me!
What was your darkest moment when you were ill? What sustained you throughout?
The day a stoma nurse placed a bag on my abdomen to prepare me for life with a bag. To me, it meant the disease had won. I was sustained by my wonderful wife.
What are the top 3 things you most enjoy about your post-FMT life?
Energy, I can eat anything, FMT and Taymount clinic has become part of my life now. My background is in startups and I’m helping Taymount grow so that FMT can be available to more patients.
What advice do you have for others to deal with the fear and (perceived) risk about FMT, in the face of skepticism from treating doctors, friends and family?
Read the success stories on websites like PoP and ask advice from people who have been through FMT.
What advice do you have for someone trying to make a decision about FMT?
What have you got to lose? What alternatives are there?
If you’d like to know more about Gerry and Taymount Clinic, visit their website.