Where do you live?
How old are you?
What percentage better are you?
From C Diff 100%
What was your diagnosis and what treatments did you try before FMT?
I have Crohn’s Disease and had C Diff – had three courses of antibiotics – flagyl and Vancomycin which all failed.
When did you have your first and last FMT treatment?
4 months ago. One FMT via colonoscopy followed up by a diy FMT a week later at home
How many FMT treatments did you need to see initial results and the results you have today?
Were there other perpetuating factors in your illness or illnesses, or was your only issue a bacterial imbalance?
Major Crohns flare.
Does your condition still need maintenance eg diet, supplements, medication etc to keep it in remission?
The Crohns does, but I still test negative for C Diff
How and when did you first hear of FMT?
Online – researching treatments for C Diff.
What factors did you take into account when deciding to do FMT?
The research – credible studies demonstrating the success of FMT for C Diff.
What did your doctor/s say?
They initially refused to give me FMT, but I eventually was able to convince them.
What criteria did you use to choose a donor?
A healthy person with a good diet, never takes antibiotic and has no tummy troubles.
How did you approach your donor and what was that person’s response?
My daughter offered, but was unsuitable as she tested positive for blastocystis and dientamoeba. I asked a close friend who fitted my criteria, she was honoured to be able to help me.
What was your FMT experience like?
I was under anaesthetic for the first one (with a full theater as it was the first FMT at that hospital) the 2nd one at home was fine. I prepped the slurry for both procedures myself at home.
Do you have any funny stories from your FMT journey?
My donor can be “full of shit” sometimes. We joke about me now being full of her shit.
What was your darkest moment when you were ill?
I thought I could land up with no large bowel and even die.
What sustained you throughout?
I tried really hard to take things day by day.
What are the top 3 things you most enjoy about your post-FMT life?
- I have not been in hospital (I spent 10 weeks in hospital over 8 admissions over 6 months)
- I am not on the toilet all the time
- I am not taking all the antibiotics which really made me feel sick.
What advice do you have for others to deal with the fear and (perceived) risk about FMT, in the face of scepticism from treating doctors, friends and family?
Show them the credible research!
What advice do you have for someone trying to make a decision about FMT?
Find a donor, test them and just do it! DIY if you can’t find anyone to do it for you or can’t afford the treatment.