Julie’s Story

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fecal transplantWhere are you from?

Florida, USA.

What percentage better are you?

Right now 95% for the last 8 months.

What was your diagnosis and what treatments did you try before FMT?

I had a terrible case of C-Diff like 9 years ago, for which I was treated twice and recovered. I was then subsequently diagnosed with Ulcerative Colitis in December 2010.  I have been on Prednisone many times, and tried Asacol HD.  I have also been treated for Candida with Diflucan.  I tried a variety of supplements and pro-biotics and steroidal enemas as well.

When did you have your first or last FMT treatment? 

Last night…first one was July 2011.

How many FMT treatments did you need to see (a) initial results and (b) the results you have today? 

I have seen results after each and every FT treatment.  I did follow advice and do the FMT while the condition was under moderate control, so that I could hold it overnight.

How and when did you first hear of FMT? 

A couple years ago I started researching online for anything to help, when Prednisone made me miserable.

What factors did you take into account when deciding to do FMT? 

I was so miserable and would try almost anything..and did not want to have to get on Remicade or 6MP.

What did your doctors say? 

They were mostly sceptical.

What criteria did you use to choose a donor? 

The healthiest person I knew who hadn’t been on any anti-biotics for years and years and who lived with me and laughs with me. My donor is my husband and he was as desperate to give me relief as I was to find it.

What was your FMT experience like? 

Nice and easy. My husband/donor pooped it, blended it and administered it…and cleaned up!!

What was your darkest moment when you were ill?

You just feel miserable when you are sick.  You are up nights..never know during the day if you are safe.

Tell us about the emotional journey you went through during your years of suffering.

The day I had to buy adult diapers was the day I was at my low…I had an accident in the pharmacy.  It was humiliating.

What sustained you throughout? 

Desperation to find something else to work. I was ready to have surgery..anything to make it stop..

What are the top 3 things you most enjoy about your post-FMT life?

Every day I wake up with no UC symptoms I am happy.  My stress level is so low because I don’t want stress to go to my tummy.  Happy is what keeps me healed..that and the FMT.

What advice do you have for others to deal with the fear and (perceived) risk about FMT, in the face of scepticism from treating doctors, friends and family? 

It’s worth a try…I got past gross quickly.  I couldn’t understand why the doctors were so sceptical..but anything past accepted medical treatments is taboo to them.  They weren’t living inside me.

What’s the best advice you can give someone trying to make a decision about FMT?

Do it.  Find a donor – the nearer and dearer the better.  Or find a doctor willing to do it and give it a try. What if you get better?

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Categories: fecal microbiota transplant, FMT success stories, ulcerative colitis

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9 replies »

  1. And people wonder why I hate the doctor so-called profession.

  2. She mentions when she started her FMT and her last. But how does she know when and how often to continue the treatments. Does she wait for symptoms or have a regular maintenance schedule? And is she now off all other medications? And has colonoscopy confirmed the absence of inflammatory changes?

  3. Thanks for the comments…ever since the first FT’s we did starting in June 2011 I realized what a gift this was..its not a pleasant treatment by any means but when your tummy is bad what it is and how its done goes out the window. Pamela, I normally try to do FT when I am well or close to well because it is vital to be able to hold it as long as possible…I try to do it at bedtime and hold it through until morning. We try to do 6 or 7 nights in a row the first week..skip a week and treat again for a few nights until I’m solid. I don’t have a regular maintenance schedule..just do it if I get a twinge or have to many loosey goosey potty moments. Other then that I guess the schedule of doing more depends on the individual. Medicine wise….I will always take the LDN as it is good for many things and I am slowly going off the Budesonide. After my first FT and the remission that followed I did have a colonoscopy which showed an amazingly healthy pink colon..night and day from the picture of the scope that diagnosed me. Roger…it is funny that my doc at the time had the nerve to say he saw some inflammation,..a newer doctor was amazed with the results the colon picture showed. I wish everyone the best..

  4. Do you know if it works for severely constipated people?

  5. In the facebook group we have two cases of constipation that have improved signifcantly with FMT.

  6. How do I get instructions on how to exactly do a FMT. I had my colon removed over two years ago and I’m still suffering with infections. Can someone please e-mail me the instructions.

  7. DIY Instructions are under the e-Patients tab at the top of the page. However I would consult a doctor before doing FMT without a colon as the small intestine is supposed to be sterile. All the best.

  8. You mentioned LDN in your notes above….Are you on Low Dose Naltrexone, if so….did that compound help you?

  9. Sally, you can find info on donor testing here.

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