Linda’s Story

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fecal transplant for C diff

 

Where do you live?

I live in Southern California, USA

How old are you?

I am 68 years old.

What percentage recovered are you?

I am 100 % better from Fecal Transplant.  I am C-Diff free for 1 full year. Even after a recent surgery and taking a antibiotics, I am free !

What was your diagnosis and what  treatments did you try before FMT?

I was diagnosed with C. difficle in 2010 and had it for 4 years. I had 11 reoccurrences between 2010-2014.

I invested thousands of dollars in vitamin supplements, Probiotics and Flagyl, Dificid and Vancomycin. I went through this on-going process for 4 years and lost my health, independence, my friends and 68 pounds.

How many FMT treatments did you need to see initial results and the results you have today?

I had my first FMT treatment 4 years after I contracted C- Diff in my doctors office through a Sigmoid, so it would be paid for. I had only one and it failed.  My GI doctor did more research and called me, saying I need many FMT and advised me to do them at home. He told me his hands were tied because of the laws in California restricted him from doing them in the hospital. I tested positive for C diff more than a dozen times over these 4 years.

I ended up doing 5 FMT doing them at home supported by my doctor.

Were there other perpetuating factors in your illness or illnesses, or was your only issue a bacterial imbalance?

My only issues were C-Diff from antibiotics taken for UTI infections,

What criteria did you use to choose a donor?  How did you approach your donor and what was that person’s response?

I looked to my family as donors. My husband and daughter were antibiotic free and tested. I explained my dying problem and why I needed to replace my bacteria with a good bacterial balance. They saw the condition I was in, and wanted to help.

What was your FMT experience like?

My experience with the first transplant in the doctors office was uncomfortable, because of the air flow with Sigmoid. The 5 I did at home went smoothly. My husband made me an incline board so I could be bottoms up, and I stayed down for hours. I was able to hold in the slurry for 6 to 27 hours.

How and when did you first hear of FMT?  What factors did you take into account when deciding to do FMT?

After reading the Power Of Poop website, I was totally convinced this was my answer. Good Bacteria.

Do you have any funny stories from your FMT journey?

My funny story is, my husband went to pick up the donor sample and accidently picked up the Sloppy Joe mix sitting on the counter top, and had to go back.

What was your darkest moment when you were ill?  What sustained you throughout?

My darkest moment: Brings tears to my eyes, I talked about my burial plans as I was dying, gave away some of my belongings. I knew doctors would not go any further to help me live.  I wanted to see my grandkids grow up…I also have a deep faith in Christ, and he directed me to all my help.

What advice do you have for others to deal with the fear and (perceived) risk about FMT, in the face of scepticism from treating doctors, friends and family?

I would highly recommend FMT to anyone suffering especially from C-Diff. It is easy, and I was desperate. I would help anyone, I was isolated and alone, I knew no one with C-Diff.  I looked in the mirror and saw bones, C-Diff ate my muscles, deprived me of nutrients, I was in a wheel chair. I looked at the poop as GOLD that would heal me and I prayed for wellness…. I have now gained 20 pounds.  Poop…such a simple thing.

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Categories: clostridium difficile, fecal microbiota transplant

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8 replies »

  1. Linda, it is wonderful to read of an end to your nightmare. Thank you for sharing your story! You mention that you had one fecal microbiota implant performed by your doctor and the you did five implants at home but you did not mention the time between the implant by your doctor and the home implants nor do you mention the time period over which the five home implants were performed. This information would be very valuable to individuals who fail their first implant. Could you provide this information please?

  2. The time between the failed FMT in the doctors office, and the 5 treatments I did at home was about a month.. I did them everyday in the evening for 5 days.

  3. Hi Linda,

    I am CIndy, and I live in Southern California too. Thank you so much for your story. I am researching FMT for autoimmunity and chronic bowel disorders. I am new to this info and just beginning to form a plan of action to do FMT. I am pretty certain it is right for me. Is it possible that I may be in touch with you directly once I get a clear view of my plan. It would be so helpful to have a local FMT success story in my corner.

    Warmly,
    Cindy M.

  4. I am very sensitive to gluten, am interested in FMT. Do I need to make sure a donor follows the gluten free guidelines?

  5. Cindy,
    Yes, of course, never know who will be helping out who. E-mail me direct at and I will give you my phone number.

  6. Yes it would be better if your donor is gluten free.

  7. Did you have constipation after fmt? If so, how did take care of it.

  8. Mindy,
    Yes, I have been constipated after my treatments of FMT, but I believe I just had C Diff too long ( 4 years ) so I think my lower colon muscles were damaged. It has been 16 months now I am well, and I went through so many regiments for constipation. I tried Mineral Oil, Benefiber, Senna Tablets, many enemas. None of this worked over 8 months. I dropped all the above and started Miralax, that is what worked for me. My GI doctor would rather I use more natural products, but I was tired of stomach pain and planning my day around enemas. Now I go every morning on my own, no difficulty, with Miralax the night before..

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