What percentage better are you?
Right now 95% for the last 8 months.
What was your diagnosis and what treatments did you try before FMT?
I had a terrible case of C-Diff like 9 years ago, for which I was treated twice and recovered. I was then subsequently diagnosed with Ulcerative Colitis in December 2010. I have been on Prednisone many times, and tried Asacol HD. I have also been treated for Candida with Diflucan. I tried a variety of supplements and pro-biotics and steroidal enemas as well.
When did you have your first or last FMT treatment?
Last night…first one was July 2011.
How many FMT treatments did you need to see (a) initial results and (b) the results you have today?
I have seen results after each and every FT treatment. I did follow advice and do the FMT while the condition was under moderate control, so that I could hold it overnight.
How and when did you first hear of FMT?
A couple years ago I started researching online for anything to help, when Prednisone made me miserable.
What factors did you take into account when deciding to do FMT?
I was so miserable and would try almost anything..and did not want to have to get on Remicade or 6MP.
What did your doctors say?
They were mostly sceptical.
What criteria did you use to choose a donor?
The healthiest person I knew who hadn’t been on any anti-biotics for years and years and who lived with me and laughs with me. My donor is my husband and he was as desperate to give me relief as I was to find it.
What was your FMT experience like?
Nice and easy. My husband/donor pooped it, blended it and administered it…and cleaned up!!
What was your darkest moment when you were ill?
You just feel miserable when you are sick. You are up nights..never know during the day if you are safe.
Tell us about the emotional journey you went through during your years of suffering.
The day I had to buy adult diapers was the day I was at my low…I had an accident in the pharmacy. It was humiliating.
What sustained you throughout?
Desperation to find something else to work. I was ready to have surgery..anything to make it stop..
What are the top 3 things you most enjoy about your post-FMT life?
Every day I wake up with no UC symptoms I am happy. My stress level is so low because I don’t want stress to go to my tummy. Happy is what keeps me healed..that and the FMT.
What advice do you have for others to deal with the fear and (perceived) risk about FMT, in the face of scepticism from treating doctors, friends and family?
It’s worth a try…I got past gross quickly. I couldn’t understand why the doctors were so sceptical..but anything past accepted medical treatments is taboo to them. They weren’t living inside me.
What’s the best advice you can give someone trying to make a decision about FMT?
Do it. Find a donor – the nearer and dearer the better. Or find a doctor willing to do it and give it a try. What if you get better?